The Appendix Cancer Connection
a 501(c) 3 non-profit corporation devoted to
providing education, support and hope to those diagnosed with Appendix Cancer
and Peritoneal Surface Malignancies


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Malignant Carcinoid
Mucinous Adenocarcinoma and Pseudomyxoma peritonei (PMP)
Adenocarcinoid (Goblet Cell Carcinoid)
Signet Ring Cell Carcinoma (Signet Ring Adenocarcinoma)


Physicians and Facilities Treating Appendix Cancer
Cytoreduction Surgery
Hyperthermic Intraperitoneal  Chemotherapy (HIPEC)
Complications of Cytoreduction Surgery and HIPEC
Systemic (IV) Chemotherapy for Appendiceal Cancer
After Treatment Follow-Up


Hair Loss and Chemotherapy
Colostomy Information
Herbal and Complimentary Care
Hospice Care


Peritoneal Surface Malignancy
Peritoneal Carcinomatosis
Staging of Peritoneal Cancer


Clinical Trials
General Practical Assistance (Travel, Insurance, Medical Bills) 


Right foot, Left Foot, Breathe.....





Clinical Trials

General information I have received from National Institutes for Health and the National Cancer Institute concerning clinical trials: 

  • The medical care is free of charge, and a per diem rate is paid for food and housing if one has to travel or relocate to participate in a study. 

  • A person seeking to participate in a clinical trial would have to pay initial travel expenses for evaluation though, the per diem rates apply only if they are accepted into the trial.  

  • US trials are not only open to US residents.

  • The best number to call for a nationwide check of clinical trials (this number would have info on the types and locations of all clinical trials available in the US) is 1-800-422--6237.

  • If calling with questions regarding a clinical trial, be sure you have the Clinical Trial Identifier available.      

  • To do a search for clinical trials that are actively recruiting patients, check this link:  Clinical    Be sure to click the very useful "Help" link on that web site

Below are links to clinical trials, that to my knowledge, are currently recruiting patients


Surgery and Oxaliplatin or Mitomycin C in Treating Patients With Primary Colorectal Tumors or Tumors of the Appendix

 National Cancer Institute for the Phase III Randomized Study of Operative Debulking and Systemic Chemotherapy With or Without Intra- and Perioperative Intraperitoneal Chemotherapy in Patients with Peritoneal Carcinomatosis From Low-Grade Gastrointestinal Adenocarcinoma

Continuous Hyperthermic Peritoneal Perfusion With Cisplatin Plus Intraperitoneal Paclitaxel and Fluorouracil Following Surgery in Treating Patients With Peritoneal Cancer

 Phase II study of continuous hyperthermic peritoneal perfusion (CHPP) with cisplatin plus intraperitoneal paclitaxel and fluorouracil following surgery in patients with peritoneal carcinomatosis

 Thalidomide in Treating Patients Who Have Undergone Surgery and Chemotherapy for Cancer That Has Spread Throughout the Abdomen Due to Colorectal Cancer or Appendix Cancer

Debulking and Chemotherapy with or without Intraperitoneal Chemotherapy to Treat Peritoneal Carcinomatosis

Treatment of a Cancerous Disease of the Peritoneum With Complete Cytoreductive Surgery and Intraperitoneal Chemohyperthermia

 Treatment of Peritoneal Cancer with Surgery, Perfused Heated Cisplatin and Chemotherapy

This website is for informational and educational purposes only. Readers are encouraged to confirm the information contained herein with other sources. The information on this website is not complete and not intended to replace medical advice offered by physicians or health care providers.  Patients and consumers should review the information carefully with their professional health care provider.  

  Copyright 2005-2010 C. Langlie-Lesnik  RN BSN  All rights Reserved  

Last Updated  02/12/2010 12:50:07 PM